It was a rough night here at the hospital, but the sky is beginning to brighten and a new day is just around the corner.
Esther and I will be heading down to dialysis in a few minutes. We are both exhausted.
If you'd like to send an encouraging note to Esther while she is here at the hospital, please click on the link below and follow the directions. Esther's room number is Baird 523. That will change tomorrow, but the volunteers who hand deliver the emails will be sure to find her.
http://www.fletcherallen.org/patients_visitors/visitors_guide/send_a_gift/
Tuesday, September 15, 2009
Monday, September 14, 2009
Rough Spot
If you have never had a child experience a "10" on the pain scale, get down on your knees and thank God! This evening we watched helplessly as Esther suffered through almost three hours of the most excruciating pain that she has ever experienced. I cannot describe the anguish we felt as we held her and tried to comfort her. To have a child begging you to make the pain go away and be unable to do it, is one of the worst things I have experienced as a parent. I'm afraid that Esther thought she was going to die. She gave us careful instructions that we were to donate as many of her organs as possible. I cannot type this without crying. In this age of modern medicine, it was unconscionable that they allowed her to suffer so terribly for so long.
Despite the incredible pain, Esther has been SO sweet. She just wanted to be sandwiched between her two parents and so we all squeezed into the bed. She couldn't get close enough to us. She whispered over and over again, "I love you, I love you". She was grateful for every small gesture that we made to ease her pain, thanking us each time. One of the challenges from the sermon this past Sunday was to consider what comes out of us when we are squeezed by hardship and difficulty. Tonight we saw the love and sweetness that is inside Esther. I wonder, if she had been angry and nasty through those hours of pain, would it have been easier for the rest of us to endure? As it was, it was heartwrenching.
After many, many requests and ultimately demanding that something be done, Esther was finally sufficiently medicated. She is now sleeping. Tom just crawled out from under her arms and has headed home for the night. I am just watching her sleep and trying to find peace.
At this moment, I am especially grateful for the wisdom of my dear friend, Kit, who insisted that I cancel the three Latin classes that I would otherwise be teaching tomorrow morning. Besides the likelihood of me being a basketcase tomorrow, this is where I need to be. Kit, thank you for mothering me!
There are both new and familiar faces here on Baird 5. One set of faces that is missing is the Perri family. Their Ross and our Samuel spent a lot of time together here and in the ICU over the last two years. Ross was buried on Friday. I know that watching a child suffer is nothing compared to losing a child. Tony and Tammy, we grieve with you and for you. I pray that you will find peace and comfort in the arms of Christ and your loved ones.
Despite the incredible pain, Esther has been SO sweet. She just wanted to be sandwiched between her two parents and so we all squeezed into the bed. She couldn't get close enough to us. She whispered over and over again, "I love you, I love you". She was grateful for every small gesture that we made to ease her pain, thanking us each time. One of the challenges from the sermon this past Sunday was to consider what comes out of us when we are squeezed by hardship and difficulty. Tonight we saw the love and sweetness that is inside Esther. I wonder, if she had been angry and nasty through those hours of pain, would it have been easier for the rest of us to endure? As it was, it was heartwrenching.
After many, many requests and ultimately demanding that something be done, Esther was finally sufficiently medicated. She is now sleeping. Tom just crawled out from under her arms and has headed home for the night. I am just watching her sleep and trying to find peace.
At this moment, I am especially grateful for the wisdom of my dear friend, Kit, who insisted that I cancel the three Latin classes that I would otherwise be teaching tomorrow morning. Besides the likelihood of me being a basketcase tomorrow, this is where I need to be. Kit, thank you for mothering me!
There are both new and familiar faces here on Baird 5. One set of faces that is missing is the Perri family. Their Ross and our Samuel spent a lot of time together here and in the ICU over the last two years. Ross was buried on Friday. I know that watching a child suffer is nothing compared to losing a child. Tony and Tammy, we grieve with you and for you. I pray that you will find peace and comfort in the arms of Christ and your loved ones.
Surgery Complete!
All is well!! Tom and I are now sitting in the PACU with Esther. She is drifting in and out of consciousness with an emesis basin under her chin. They are working to keep her comfortable.
Praise the Lord, the surgery went without complication! Esther ending up losing three organs for the price of two. In addition to her kidneys, they decided to also remove Esther's appendix when they found that it was a bit plugged up. Apparently, the chances of having appendicitis are much higher when one has a blocked appendix, so they removed it as a precaution. They tell us it would be a more complicated procedure to remove an appendix with a transplanted kidney in place.
We will hang out here for a couple hours until she is more comfortable and a little more alert. Then it is on to Baird 5 and all the familiar faces up there.
Praise the Lord, the surgery went without complication! Esther ending up losing three organs for the price of two. In addition to her kidneys, they decided to also remove Esther's appendix when they found that it was a bit plugged up. Apparently, the chances of having appendicitis are much higher when one has a blocked appendix, so they removed it as a precaution. They tell us it would be a more complicated procedure to remove an appendix with a transplanted kidney in place.
We will hang out here for a couple hours until she is more comfortable and a little more alert. Then it is on to Baird 5 and all the familiar faces up there.
Surgery in Progress
With the hospital's new wireless internet, I will have easier access to the internet. So here I am, reporting live from the scene. We just had a bit of a scare when the hospital pager went off. We've been through this enough times to know that the timing was odd. Usually, a page at this point in a surgery means bad news. Thankfully, it was just one of the surgeons returning my camera to me and reporting that one kidney was out and that everything was going well.
So, thanks to technology and a surgeon who doubles as a photographer.... here is a picture of Esther's recently deceased left kidney! May it rest in peace! One more still to come out.
So, thanks to technology and a surgeon who doubles as a photographer.... here is a picture of Esther's recently deceased left kidney! May it rest in peace! One more still to come out.
Sunday, September 13, 2009
Exciting News!
Well, it is time to fire up the blog once again! I'm hopeful that this round of updates will all be good news. So, let's start with a super duper awesome announcement....
Esther is having a kidney transplant on Wednesday, September 16th! Her wonderful, kind, generous, lovely, talented, funny donor is Katherine Blume! She is Tom's cousin and has come all the way from California for the big event. She brought along her 5-year old daughter, Nicole. We have all enjoyed reconnecting with Katherine and look forward to doing the same with other long lost family members who will be arriving throughout the week to support Katherine. The second cousins (Nicole and my children) have been having a great time together swimming in the hotel pool and doing some sightseeing.
Before Katherine and Esther's big day on Wednesday, Esther has to have a double nephrectomy on Monday (tomorrow!) to remove both of her native kidneys. On Tuesday, Esther will have dialysis, and on Wednesday, the surgeons will reopen the same incision to do the transplant. Two surgeries in three days is a lot, but this routine was used successfully when Katie had her transplant, so they are going to try it again on Esther.
There is so much more I could say...so much has happened in the last few months...but it is getting late and we have to be at the hospital tomorrow at 6 a.m. Please keep both Katherine and Esther in your prayers this week. It will be a hard week for both of them.
Here's a picture of Katherine and Esther after a tour at the Ben and Jerry's factory in Waterbury.
Katherine, you are a hero in every sense of the word! I struggle to find words adequate to express my deep gratitude for your gift. Please know that we recognize the incredible sacrifice that you are making on Esther's behalf and we are so, so grateful! A thousand thank you's!!
Esther is having a kidney transplant on Wednesday, September 16th! Her wonderful, kind, generous, lovely, talented, funny donor is Katherine Blume! She is Tom's cousin and has come all the way from California for the big event. She brought along her 5-year old daughter, Nicole. We have all enjoyed reconnecting with Katherine and look forward to doing the same with other long lost family members who will be arriving throughout the week to support Katherine. The second cousins (Nicole and my children) have been having a great time together swimming in the hotel pool and doing some sightseeing.
Before Katherine and Esther's big day on Wednesday, Esther has to have a double nephrectomy on Monday (tomorrow!) to remove both of her native kidneys. On Tuesday, Esther will have dialysis, and on Wednesday, the surgeons will reopen the same incision to do the transplant. Two surgeries in three days is a lot, but this routine was used successfully when Katie had her transplant, so they are going to try it again on Esther.
There is so much more I could say...so much has happened in the last few months...but it is getting late and we have to be at the hospital tomorrow at 6 a.m. Please keep both Katherine and Esther in your prayers this week. It will be a hard week for both of them.
Here's a picture of Katherine and Esther after a tour at the Ben and Jerry's factory in Waterbury.
Katherine, you are a hero in every sense of the word! I struggle to find words adequate to express my deep gratitude for your gift. Please know that we recognize the incredible sacrifice that you are making on Esther's behalf and we are so, so grateful! A thousand thank you's!!
Wednesday, August 26, 2009
Still Waiting
As of today, Samuel has accumulated 600 days on the waiting list. There have been no offers of a kidney from the organ bank. It seems Samuel has developed a significant number of antibodies which makes him incompatible with a large percentage of the population. We have recently had three wonderful people step forward to donate. Sadly, because of these antibodies that Samuel has developed, he can't receive a kidney from any of the three. The transplant team is beginning to explore other options.
Tuesday, July 7, 2009
A Party and a Procedure ...or... A Festivity and a Fistulogram
Wednesday will be a particularly busy day at the hospital for us. Samuel will be "celebrating" his 300th dialysis treatment. He spent all afternoon baking cookies (all by himself!) to bring for tomorrow's party. It will be a time to recognize and thank the team of dialysis nurses who has taken such good care of Samuel for these past 27 months.
A couple months ago as we were driving to dialysis, Samuel said to me, "Some days I wish that I didn't have kidney disease [long thoughtful pause], but then I think about all the nice people that I would never have met." Samuel proceeded to list many of the doctors, nurses, and hospital staff whom he has come to know and enjoy.
After all the terrible and difficult things that Samuel has been through these last 2 years...after all the pain that he has endured...after all the disappointments...after all the days, weeks, and months that he has spent in the hospital...for him to have that as his focus is pretty incredible! I am so thankful for the young man that the Lord is shaping and the amazing attitude that He has given Samuel.
Today is Samuel's 550th day on the waiting list. We are still waiting, but not so patiently. Every time the phone rings, I wonder if it is "the call". Most mornings, Samuel optimistically announces, "Today I am getting my transplant!" One of these days he will be right!
Wednesday will also be a busy day for Esther. As you may know, she started dialysis back on June 24th. It was not a very auspicious beginning. After two dialysis sessions of multiple needle sticks trying to get her hooked up and her fistula working properly, Esther had had a total of 50 minutes of dialysis and was black and blue from her wrist to her elbow. They started talking about putting in an ash split catheter (like Samuel had for so long). As far as I was concerned, things were moving too quickly and in the wrong direction!
I petitioned for a time out and we shipped Esther off to the Jersey shore with some dear friends for a week of R and R. She came back home this past weekend and we are ready to try again. The consensus is now that she has a narrowing (called a stenosis) in her fistula that is causing all the trouble. Tomorrow, while Samuel is partying, Esther will be having a surgical procedure called a fistulogram. I'm guessing they will use angioplasty to try to expand the stenosis and make the fistula useable. If they are successful, a groggy Esther will be wheeled directly up to Shep 4 for dialysis. If they are not successful, I fear we will have to resort to the dreaded catheter. Based on Esther's labs from Monday, we no longer have the luxury of postponing treatment.
I'd be grateful for your prayers tomorrow. As I've probably shared before, one of my least favorite things in all the world is having multiple family members in the hospital at the same time. I can manage okay when everyone is in the same place, but when they start getting spread around the hospital, I have a harder time being calm and serene. On the bright side, I'll likely get my exercise tomorrow running back and forth between the 1st floor and the 4th floor. I sure don't want to miss the party!
Lydia and Esther on Long Beach Island in New Jersey. Thank you, Brian, Katherine, Faith, and Lark! What a gift!
A couple months ago as we were driving to dialysis, Samuel said to me, "Some days I wish that I didn't have kidney disease [long thoughtful pause], but then I think about all the nice people that I would never have met." Samuel proceeded to list many of the doctors, nurses, and hospital staff whom he has come to know and enjoy.
After all the terrible and difficult things that Samuel has been through these last 2 years...after all the pain that he has endured...after all the disappointments...after all the days, weeks, and months that he has spent in the hospital...for him to have that as his focus is pretty incredible! I am so thankful for the young man that the Lord is shaping and the amazing attitude that He has given Samuel.
Today is Samuel's 550th day on the waiting list. We are still waiting, but not so patiently. Every time the phone rings, I wonder if it is "the call". Most mornings, Samuel optimistically announces, "Today I am getting my transplant!" One of these days he will be right!
Wednesday will also be a busy day for Esther. As you may know, she started dialysis back on June 24th. It was not a very auspicious beginning. After two dialysis sessions of multiple needle sticks trying to get her hooked up and her fistula working properly, Esther had had a total of 50 minutes of dialysis and was black and blue from her wrist to her elbow. They started talking about putting in an ash split catheter (like Samuel had for so long). As far as I was concerned, things were moving too quickly and in the wrong direction!
I petitioned for a time out and we shipped Esther off to the Jersey shore with some dear friends for a week of R and R. She came back home this past weekend and we are ready to try again. The consensus is now that she has a narrowing (called a stenosis) in her fistula that is causing all the trouble. Tomorrow, while Samuel is partying, Esther will be having a surgical procedure called a fistulogram. I'm guessing they will use angioplasty to try to expand the stenosis and make the fistula useable. If they are successful, a groggy Esther will be wheeled directly up to Shep 4 for dialysis. If they are not successful, I fear we will have to resort to the dreaded catheter. Based on Esther's labs from Monday, we no longer have the luxury of postponing treatment.
I'd be grateful for your prayers tomorrow. As I've probably shared before, one of my least favorite things in all the world is having multiple family members in the hospital at the same time. I can manage okay when everyone is in the same place, but when they start getting spread around the hospital, I have a harder time being calm and serene. On the bright side, I'll likely get my exercise tomorrow running back and forth between the 1st floor and the 4th floor. I sure don't want to miss the party!
Lydia and Esther on Long Beach Island in New Jersey. Thank you, Brian, Katherine, Faith, and Lark! What a gift!
Subscribe to:
Posts (Atom)
Posts
