We have been hoping that Esther would be able to have a pre-emptive transplant and skip dialysis altogether, but it seems the Lord has other plans for her.
Esther will join Samuel in the 3-day-a-week dialysis routine. She's disappointed, but is taking it all in stride. She is amazingly matter-of-fact about the whole thing. As of today, she has accrued 74 days of waiting time on the organ bank list. There is no telling how long it might take to get a kidney through the organ bank, but we are hoping and praying for something to come through this summer.
Samuel, on the other hand, has 536 days of waiting time accrued. That's a lot of time for a pediatric patient! He was activated on the waiting list in May and could get "the call" at any moment. Everyone, including the transplant team, is surprised that a kidney hasn't yet become available for him.
We can only wait and trust in the Lord and His perfect timing for Samuel's and Esther's transplants.
It has been a long time since I last posted. If I get a chance, I will try to fill you in on some of the highlights of the last five months. In the meantime, I would be grateful for your prayers for Esther as she begins a new phase of her personal kidney adventure.
Esther and her horse, Candy, enjoy some quiet time together.
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1 comment:
I found your story while doing a search. I just wanted to wish good luck to you guys as I know what it is like as I have been there. I have been on both Peritoneal Dialysis, Hemo Dialysis and have had 2 kidney transplants. I was diagnosed at the age of 9.
Just take one day at a time and learn as much as you guys can. Be your own advocate!
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