Thoughtful, sensitive, caring…Hannah has been an invaluable help during this ordeal. She has kept things running at home and has stepped in as surrogate mom to Esther and Lydia. Hannah, you are great! We couldn’t have survived this without you!!
Yesterday was a hard day for Samuel. After a long night, he was feeling very sick and weak. He has been asked to take at least two walks each day. He did this faithfully yesterday despite feeling so ill. I wasn't sure he was going to make it back to his room. It was hard to see him struggle so.
Because Samuel's feeding tube was clogged, instead of having his pills crushed and flushed down the tube, he had to swallow them whole. This was a challenge for him because of his intense nausea.
The surgeon decreed that his feeding tube had to be removed because it was irreparably clogged. Samuel chose to pull it out himself….brave boy!! The plan was to put a new tube back in on Monday. But the Lord may have another plan!
Samuel is doing SO well today! The difference between yesterday and today is incredible! He has no fever, no nausea, and is eating!! If he can take in enough calories on his own, he won’t need another feeding tube. He took three walks and a wheelchair ride today without too much difficulty. He also had no trouble swallowing his oral medications.
There are still many unanswered questions….What caused his recent fever? Why has he been so nauseous for so long? Why is he suddenly not nauseous today? Why is his white blood count now so low?
Yesterday, only 3 of his 14 daily lab tests were in normal ranges. Today two more are normal, but just barely. The docs are fiddling with his medications, including withholding one of his anti-rejection meds.
Meanwhile, I am just thrilled with Samuel's progress today! Thank you, Lord!! We’ll continue to wait and pray.
The surgeon decreed that his feeding tube had to be removed because it was irreparably clogged. Samuel chose to pull it out himself….brave boy!! The plan was to put a new tube back in on Monday. But the Lord may have another plan!
Samuel is doing SO well today! The difference between yesterday and today is incredible! He has no fever, no nausea, and is eating!! If he can take in enough calories on his own, he won’t need another feeding tube. He took three walks and a wheelchair ride today without too much difficulty. He also had no trouble swallowing his oral medications.
There are still many unanswered questions….What caused his recent fever? Why has he been so nauseous for so long? Why is he suddenly not nauseous today? Why is his white blood count now so low?
Yesterday, only 3 of his 14 daily lab tests were in normal ranges. Today two more are normal, but just barely. The docs are fiddling with his medications, including withholding one of his anti-rejection meds.
Meanwhile, I am just thrilled with Samuel's progress today! Thank you, Lord!! We’ll continue to wait and pray.
2 comments:
Happy Birthday Hannah! Val
I share the same birthday as Hannah! Happy Birthday!
I have had trouble sleeping through the nights recently. I seem to wake around 3am every night. Samuel always comes to my mind right away. Let him know that he is prayed for even in the middle of the night! I am so pleased to hear he feels better and pray it will continue.
In Christ,
Kim Goodling
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